Resources for Ovarian Cancer Patients
As someone who suffers from a few different chronic conditions, if something is flaring up, my medication is going to be switched or I just need information now. I always go to Google.
Despite the fact that my husband, my family, my friends, and my doctor, tell me not to Google, it’s just too convenient. Who else can I turn to at 2:00 am when I have the worst headache of my life, and I am sure that I have a rupturing brain aneurysm?
I don’t want this to happen to you, so here’s a concise list of ovarian cancer resources you can look into today.
Ovarian Cancer Research Fund Alliance: Woman to Woman
Ovarian Cancer Research Fund Alliance (OCRFA) has created a support program that pairs a woman with gynecologic cancer with a trained survivor. This trained survivor can provide one-on-one support and mentor the woman with cancer.
The program is designed to help the woman from the moment of diagnosis until the end of treatment. The trained survivor is, “…carefully matched to new patients based on cancer type, age, language and culture, patient preferences, as well as other relevant factors. They are professionally trained and supervised by a coordinator who also oversees the program.”
Cancer Hope Network
The Cancer Hope Network (CHN) is not specific to ovarian cancer but is available to patients with any type of cancer.
They have a team of over 400 support volunteers who are matched with cancer patients and loved ones. Much like OCRFA’s Woman to Woman program, CHN’s program offers emotional support to cancer patients through all stages – diagnosis, treatment, and recovery.
Their program is unique because they also offer support to caregivers who are also stressed, due to caring for their loved ones.
Patient Advocate Foundation
Treatment for cancer can be pricey – especially if you’re not sure what your insurance covers. The Patient Advocate Foundation (PAF) is a national non-profit organization that acts as a liaison between the patient and their insurer to solve insurance issues.
According to their website, they “…seek to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability.”
The best part about PAFs services? They are free! They rely on volunteer services to run their non-profit services.
SHARE Cancer Support
SHARE Cancer Support offers a variety of services for women who have breast cancer or ovarian cancer – and all are free-of-charge.
The foundation is run by breast cancer and ovarian cancer survivors. Their mission is, “…to create and sustain a supportive network and community of women affected by breast and ovarian cancers.”
They offer telephone support services, various support groups, educational programs, advocacy programs, and offer advice on speaking to your physician.
Additionally, they also have LatinaSHARE, which is specific for women battling breast cancer and ovarian cancer, who feel more comfortable speaking in Spanish.
National Ovarian Cancer Coalition
The National Ovarian Cancer Coalition (NOCC) offers a variety of resources about community events, research regarding ovarian cancer, discussions regarding early diagnosis of ovarian cancer and news tidbits about ovarian cancer.
You can find information about ovarian cancer in general, such as risk factors and treatment options. You can also locate a local chapter and join CancerConnect, which is an online community for other women with cancer or cancer survivors.